CARRA 2021 Advancements for Juvenile Arthritis
This April, the Arthritis Foundation was pleased to participate in the first-ever
virtual
annual scientific meeting of the
Childhood Arthritis and Rheumatology Research Alliance
(CARRA).
The Arthritis Foundation and CARRA have been working together for almost 20 years, combining our areas of expertise to address questions and find solutions that are important to the community we support. Our collaboration has led to amazing progress. Together, we’ve gained so much more knowledge. We’re comparing existing treatments, developing new treatments, advancing precision medicine and accomplishing even more.
This event brought together physicians, nurses, patients, parents and representatives from health advocacy organizations to develop, design and operationalize specific research projects that answer important questions about pediatric rheumatic diseases. CARRA’s annual meeting offers attendees the opportunity to work together to discuss specific diseases and prioritize research agendas.
We collaborate scientifically and clinically to plan research aimed at improving outcomes in pediatric rheumatic diseases. Attendees divide into workgroups that delve into pressing scientific questions and apply their skills and expertise to finding answers at basic, translational and clinical research levels. This year, the workgroups met virtually from January through April, and our parent partners were instrumental in ensuring the research places patients at the center of the research. We’re working together to transform patient care and outcomes.
“With the Arthritis Foundation’s support, the CARRA Registry has grown to be the largest prospective registry of juvenile arthritis and lupus patients in the world,” says Ann Palmer, president and CEO of the Arthritis Foundation. “Our partnership is evident across the entire CARRA research portfolio. Among the Foundation’s greatest contributions is our connection to patients and their families. Patient engagement in research is crucial to tackling the complex obstacles that hundreds of thousands of families face each and every day.”
During the opening session of the 2021 CARRA Annual Scientific Meeting, Emily von Scheven, CARRA president, presented Ann Palmer, Arthritis Foundation president and CEO, with the CARRA President’s Award, to thank her for recognizing the importance of children, for her belief in CARRA’s ability to have impact and for her tenacity, especially during this terribly difficult year. CARRA, the pediatric rheumatology community, and the children of today and tomorrow, are all benefiting from her support.
As the Arthritis Foundation and CARRA partnership continues, we will fortify our united goal of ensuring that childhood isn’t made more difficult by incurable rheumatic conditions — and that each and every patient is treated as effectively as possible.
If you want to participate in research, a great way to start is to get involved in JA INSIGHTS. Input shared by parents of children ages 5-17 in the Live Yes! JA INSIGHTS study may make a world of difference. Your child’s future — and the future of generations to come — may be brighter with your help. Click here to learn more!
The Arthritis Foundation and CARRA have been working together for almost 20 years, combining our areas of expertise to address questions and find solutions that are important to the community we support. Our collaboration has led to amazing progress. Together, we’ve gained so much more knowledge. We’re comparing existing treatments, developing new treatments, advancing precision medicine and accomplishing even more.
This event brought together physicians, nurses, patients, parents and representatives from health advocacy organizations to develop, design and operationalize specific research projects that answer important questions about pediatric rheumatic diseases. CARRA’s annual meeting offers attendees the opportunity to work together to discuss specific diseases and prioritize research agendas.
We collaborate scientifically and clinically to plan research aimed at improving outcomes in pediatric rheumatic diseases. Attendees divide into workgroups that delve into pressing scientific questions and apply their skills and expertise to finding answers at basic, translational and clinical research levels. This year, the workgroups met virtually from January through April, and our parent partners were instrumental in ensuring the research places patients at the center of the research. We’re working together to transform patient care and outcomes.
“With the Arthritis Foundation’s support, the CARRA Registry has grown to be the largest prospective registry of juvenile arthritis and lupus patients in the world,” says Ann Palmer, president and CEO of the Arthritis Foundation. “Our partnership is evident across the entire CARRA research portfolio. Among the Foundation’s greatest contributions is our connection to patients and their families. Patient engagement in research is crucial to tackling the complex obstacles that hundreds of thousands of families face each and every day.”
During the opening session of the 2021 CARRA Annual Scientific Meeting, Emily von Scheven, CARRA president, presented Ann Palmer, Arthritis Foundation president and CEO, with the CARRA President’s Award, to thank her for recognizing the importance of children, for her belief in CARRA’s ability to have impact and for her tenacity, especially during this terribly difficult year. CARRA, the pediatric rheumatology community, and the children of today and tomorrow, are all benefiting from her support.
As the Arthritis Foundation and CARRA partnership continues, we will fortify our united goal of ensuring that childhood isn’t made more difficult by incurable rheumatic conditions — and that each and every patient is treated as effectively as possible.
If you want to participate in research, a great way to start is to get involved in JA INSIGHTS. Input shared by parents of children ages 5-17 in the Live Yes! JA INSIGHTS study may make a world of difference. Your child’s future — and the future of generations to come — may be brighter with your help. Click here to learn more!
