Making Copays Count in Your State
In the arthritis community, we know that medications can be expensive. I have had arthritis since I was just 2 years old, and my treatments have run the gamut of costs. From $20,000 for an in-office infusion, to $4,000 for at home infusions, I’ve seen it all.
As an adult, I treat my arthritis with home infusions, which cost around $5,000. Fortunately, I learned about a manufacturer copayment assistance program that covers most of that cost, leaving me with a manageable $50 payment each month. Without this program, affording my treatment would be impossible. Learning about this program helped me get the care I need, and I wish all patients knew about these options for coverage.
Unfortunately, the federal government recently finalized a regulation that says insurers have the right to exclude payments made by manufacturers from counting towards a patient's deductible out-of-pocket costs. This is known as an accumulator adjustment program and is becoming more common practice among insurers. This was a huge blow to the patient community and the millions of Americans who rely on medications that do not have a cheaper alternative, like a generic, to treat their serious illness. The good news is that the federal government is still allowing states to regulate these practices. This means that if a state passed a bill banning the use of an accumulator adjustments program, insurers would not be allowed to exclude manufacturer assistance from applying to my out-of-pocket costs.
For those reasons, I am eager to help advocate for state solutions to this problem. Currently, only 4 states have passed legislation impacting these programs. In my home state of Ohio, the Arthritis Foundation is hard at work on legislation that would require insurers to count payments from a charity, drug manufacturer, or other third-party toward your out-of-pocket deductible. This legislation is critically important for arthritis patients. The Arthritis Foundation is working on solving this issue in your state too.
Have you ever used a copayment assistance program? Sharing your story can help the effort. If you have had experience with using copayment assistance, please consider sharing your story in our Arthritis Story Bank . Your voice could help this important legislation get passed in your state and connect you to new opportunities to share your story.