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  • About Arthritis
    Common Topics
    woman holding her wrist What Is Arthritis?

    Arthritis is not one disease. Learn about the different types of arthritis, how they differ and why it’s important.

    microbes Inflammation and the Immune System

    Body-wide inflammation is at the root of most chronic diseases — and you may have more control over it than you think.

    Patient talking with nurse Newly Diagnosed With Arthritis

    A new arthritis diagnosis can be overwhelming. These tips can help.

    • Understanding Arthritis
    • Arthritis Types
    • More About Arthritis
    • Where it Hurts
    • Related Conditions
  • Treatments
    Common Topics
    Woman holding shoulder Webinar: Touch Therapies for Pain Management

    Learn the evidence behind popular touch therapies for arthritis, including what to try and what to avoid, for how long and when.

    Managing Arthritis Care Costs

    Learn the basics about health care costs and financial tools available to you.

    Man with head in hands on bed Webinar: Arthritis Fatigue Causes and Solutions

    Learn the various causes of arthritis-related fatigue and strategies to combat weariness.

    • Treatment Plan
    • Drug Guide
    • Joint Surgery
    • Complementary Therapies
    • Insurance Management
  • Healthy Living
    Common Topics
    Woman with upset stomach Microbiome, Gut Health & Arthritis

    Microbiome, microbes, microorganisms – these terms may be confusing, but the types of bacteria living in and on our bodies can impact arthritis. Learn what helps or harms the microbiome and the health of your gut and discover dietary changes that can make a difference. This episode was originally released on January 19, 2021.

    man exercising Stairs Workout Demo

    Strengthen your leg muscles and improve your stability to make going up and down stairs safer and easier.

    woman consoling another Arthritis and Mental Health

    Learn about the connection between arthritis, depression and anxiety and how these conditions can make your arthritis worse.

    • Ease of Use Products
    • Managing Pain
    • Recipes & Nutrition
    • Physical Activity
    • Emotional Well-being
    • Daily Living
    • Family & Relationships
  • Juvenile Arthritis
    Common Topics
    2023 JA Family Summit

    Learn about the National Juvenile Arthritis Conference, a place for families to connect, share and learn.

    JA Camps

    The Arthritis Foundation’s JA camp programs give kids with arthritis and related childhood rheumatic diseases the chance to make lasting memories.

    Juvenile Arthritis Volunteer

    • About Juvenile Arthritis
    • Treatment
    • Managing Pain
    • Medical Decisions
    • Nutrition
    • Emotional Well-being
  • Professionals
    Common Topics
    Transforming Clinical Interactions

    The Live Yes! Arthritis community connects patients with others online and in-person for support and education, and encourages patients to play an active role in their health care.

    Partners 4 Patients with Arthritis

    The Arthritis Foundation recently launched an initiative to build stronger relationships and increase recognition of our most engaged practices.

    Fellowships

    See how we're aiming to address the growing shortage of arthritis specialists, especially in under-served parts of the country.

    • Better Living Toolkits
    • Our Issue Briefs
  • Science
    Common Topics
    OACS Forum Series

    The Osteoarthritis Clinical Studies Forum Series features OA thought leaders from across the globe discussing the future of how the disease can be treated to improve patient outcomes.

    man bandaging boy's knee Conquering Childhood Arthritis

    The Arthritis Foundation is mobilizing patients and their families to engage in studies comparing the effectiveness of treatments for juvenile arthritis and funding research for more options.

    Focus

    • Awards
    • Funding Opportunities
    • OACS Forum Series
    • Osteoarthritis Focus
    • Participate in Clinical Trials
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  • Get Involved
    Common Topics
    Capital hill Action Center

    Take action today - use the resources here to learn who your elected officials are, what opportunities we have to advocate from the comfort of your own home, federal and state legislation, and more!

    LiveYes! Insights thumbnail Live Yes! INSIGHTS

    Share your experience in a 10-minute assessment to be among those changing the future of arthritis.

    woman listening to podcast Live Yes! Podcast

    You may have arthritis, but it doesn't have you. The Arthritis Foundation’s one-of-a-kind podcast. Hosted by patients, for patients.

    • Advocacy
    • Ways to Give
    • Fundraising
    • Volunteer
    • Partnership
    • Live Yes! Arthritis Community
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Back

Rose Family: Stronger Together

Early, aggressive treatment and support from the arthritis community have helped the Rose family take back control.

Carson Rose was only a few months old and learning to crawl when his parents, Chrissy and Jason Rose, noticed something off in his movements. Carson avoided putting weight on his wrist and instead “army crawled” on his elbow on one side, but not the other. In hindsight, they said, this was one of the earliest signs of the polyarticular juvenile idiopathic arthritis (JIA) their son, now 7, would soon be diagnosed with.

“Looking back, this was a red flag that we missed because we didn’t have any idea what we were looking for or what we were dealing with,” says Chrissy. “We didn’t know JIA existed.”

At 10 months, Carson was limping as he learned to walk. His parents — and the first doctors they took him to — thought he had suffered some kind of injury. When time and the prescribed medications failed to heal it, Chrissy and Jason spent a few months as, “the annoying parents at the pediatrics office,” in Chrissy’s words.

They finally did an ANA (antinuclear antibody) test, a blood test used to diagnose JIA and other autoimmune disorders, and were referred to a pediatric rheumatologist.

However, there was an eight-month wait to see their local specialist, so they made the two-hour drive to a regional children’s hospital. There, 13-month-old Carson received an official diagnosis of JIA, as well as a round of corticosteroid injections done under anesthesia to bring his flaring wrist and knee joints under control.

Hard Decisions

Carson’s doctors followed the joint injections with a prescription for a nonsteroidal anti-inflammatory medication they hoped would control his pain, swelling and other symptoms. The medication didn’t help.

Around this time, the Roses were in the middle of moving to their current home in Indiana. There, new doctors recommended methotrexate, a well-studied and effective treatment for JIA, but one that was originally developed as a cancer drug. Knowing this made the decision tough, says Jason. “I was in some denial at that point. I’d say, ‘Let’s go see another doctor,’ because I wanted different answers.”

But both parents knew they wanted to be aggressive in Carson’s treatment. “When we were faced with the option to start using methotrexate, it was a huge decision, but we decided at the time to be fast and aggressive to try and get a handle on it,” Chrissy says.

Oral methotrexate upset Carson’s stomach, so they switched to weekly injections of the drug. “It was traumatic for him and for us,” says Jason. But they coped, and Carson began to get better.

After a couple years, his parents and his doctors agreed to try to wean him off medication.

“He hasn’t taken any medication in about two and half years, and at the same time he’s become more and more active in sports. There’s been no looking back, just solid looking forward and living the life of a normal child,” Jason says.

“Early diagnosis and aggressive treatment played a huge part in us being able to get Carson’s JIA under control as quickly as we did,” says Chrissy. The Arthritis Foundation, which Chrissy first connected with when they moved to Indianapolis, has had a major impact on the entire family, including Carson’s 12-year-old sister, Kylee.

Joining the Arthritis Community

The family was still in the early days of Carson’s diagnosis when they relocated to Indianapolis in 2013. “I was googling and reading, and we found an Arthritis Foundation JA family day. We went, and from that point we dove in headfirst and never looked back,” Chrissy says.

Now, the Roses are often found at local and national Arthritis Foundation conferences and work together on fundraising walks and events. Carson’s Crew, the family’s Walk to Cure Arthritis team, has raised more than $30,000 in the last three years to support arthritis research.

Carson, the 2019 National Youth Honoree for Walk to Cure Arthritis, is an outgoing kid who enjoys talking to others about his experience with arthritis.

“He’s gotten better and better at expressing himself,” says Jason. “We made a video for the Arthritis Foundation when he was 3, and Chrissy and I did most of the talking. Now it’s him talking, and that’s been so cool to see. He’s kind of a ham and enjoys the spotlight.”

Carson says he likes teaching people about arthritis. “When they see me, they can learn that even though arthritis hurts your body, it doesn’t stop you from doing things that you like. I can still play baseball and basketball and wrestle.”

Kylee is also active in Arthritis Foundation events. Her parents are proud of how she has handled having a younger brother with a condition that demands a lot of attention.

“Sometimes, with all the doctor’s appointments and other ways arthritis affects the whole family, it can be frustrating for her,” says Jason. “It’s helped her to go to events and talk to other siblings.”

Kylee acknowledges that having a little brother who sometimes gets all the attention can be hard. More than anything, though, she is proud of him.

“He has been through a lot for being so young,” she says. “I like helping with fundraising and teaching other people about arthritis now that I’m older. I think it’s important to remember that having arthritis isn’t fun, no matter how much attention you get. The more ways you can find to be involved, the better.”

With Carson’s JIA under good control, the Roses are focusing on giving back to the community that has given them so much. Chrissy is a resource for families who are just learning about their child’s JIA, while at National JA Conferences Jason has led dad’s group discussions and used his professional skills as a chef to create nutritional workshops. Kylee contributes fundraising ideas and worked a conference registration booth last year.

“The Arthritis Foundation came into our lives when we couldn’t have needed them more and became a part of the family we didn’t know we’d ever need,” says Chrissy. “Now we’re able to give something back and spread some hope about this disease.”

Related Resources:



  • Salute JA Warriors During Juvenile Arthritis Awareness Month

  • Live Yes! Connect for JA Parents: Q&A with Jessica Ward, JA Parent Facilitator

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    Join us and become a Champion of Yes. There are many volunteer opportunities available.

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    Take part to be among those changing lives today and changing the future of arthritis.

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    Proud Partners of the Arthritis Foundation make an annual commitment to directly support the Foundation’s mission.

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Ways to Give

Every gift to the Arthritis Foundation will help people with arthritis across the U.S. live their best life. Whether it is supporting cutting-edge research, 24/7 access to one-on-one support, resources and tools for daily living, and more, your gift will be life-changing.

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Help millions of people live with less pain and fund groundbreaking research to discover a cure for this devastating disease. Please, make your urgently-needed donation to the Arthritis Foundation now!

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Become an Arthritis Foundation member today for just $20 and you'll receive access to helpful tools..... and more.

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Honor a loved one with a meaningful donation to the Arthritis Foundation. We'll send a handwritten card to the honoree or their family notifying them of your thoughtful gift.

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Volunteer


Volunteer Opportunities

The Arthritis Foundation is focused on finding a cure and championing the fight against arthritis with life-changing information, advocacy, science and community. We can only achieve these goals with your help. Strong, outspoken and engaged volunteers will help us conquer arthritis. By getting involved, you become a leader in our organization and help make a difference in the lives of millions. Join us and become a Champion of Yes.

Become a Volunteer

More About Volunteering

  • Walk to Cure
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  • Local Leadership Board

Live Yes! INSIGHTS


Give Just 10 Minutes.

Tell us what matters most to you. Change the future of arthritis.

By taking part in the Live Yes! INSIGHTS assessment, you’ll be among those changing lives today and changing the future of arthritis, for yourself and for 54 million others. And all it takes is just 10 minutes.

Your shared experiences will help:

- Lead to more effective treatments and outcomes
- Develop programs to meet the needs of you and your community
- Shape a powerful agenda that fights for you

Now is the time to make your voice count, for yourself and the entire arthritis community.

Currently this program is for the adult arthritis community.  Since the needs of the juvenile arthritis (JA) community are unique, we are currently working with experts to develop a customized experience for JA families.

How are you changing the future?

By sharing your experience, you’re showing decision-makers the realities of living with arthritis, paving the way for change. You’re helping break down barriers to care, inform research and create resources that make a difference in people’s lives, including your own.

Get Started

Partner


Meet Our Partners

As a partner, you will help the Arthritis Foundation provide life-changing resources, science, advocacy and community connections for people with arthritis, the nations leading cause of disability. Join us today and help lead the way as a Champion of Yes.

Trailblazer

Our Trailblazers are committed partners ready to lead the way, take action and fight for everyday victories. They contribute $2,000,000 to $2,749,000

Visionary

Our Visionary partners help us plan for a future that includes a cure for arthritis. These inspired and inventive champions have contributed $1,500,00 to $1,999,999.

Pioneer

Our Pioneers are always ready to explore and find new weapons in the fight against arthritis. They contribute $1,000,000 to $1,499,999.

Pacesetter

Our Pacesetters ensure that we can chart the course for a cure for those who live with arthritis. They contribute $500,000 to $999,000.

Signature

Our Signature partners make their mark by helping us identify new and meaningful resources for people with arthritis. They contribute $250,000 to $499,999.

Supporting

Our Supporting partners are active champions who provide encouragement and assistance to the arthritis community. They contribute $100,000 to $249,999.

More About Partnerships

  • Partner with Us
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  • Let's Get a Grip On Arthritis
  • Promotions that Give Back