Your Disease, Your Voice
We are hosting, along with our partner, the Childhood Arthritis and Rheumatology Research Alliance (CARRA), the Juvenile Idiopathic Arthritis Patient-Focused Drug Development (PFDD) meeting . This meeting, driven by our patients and caregivers, will provide the U.S. Food and Drug Administration (FDA) and industry personnel with input directly from you on how this disease affects your life, your experiences with current treatments, and the need for newer and better treatments.
The meeting takes place in Washington, D.C. on August 2, 2018 from 9am to 3:15pm ET and will be held at the Grand Hyatt Washington. Many of our patients and their parents will be in attendance, and we’re thrilled about that! You can also listen and participate from the comfort of your own home. We will be streaming the meeting live , from 10am – 3:15pm ET. Not only can you listen to the meeting, but you will have the unique opportunity to answer polling questions throughout and submit your comments and questions, so they can be addressed during the meeting!
We want to hear from you – it’s important for everyone to know the impact of JIA on daily life, the symptoms that are most challenging, your experiences with currently available treatments and the need for new and different treatments. Representatives from the FDA and other regulatory agencies, drug developers, health care providers, academic researchers will be listening.
Register for the live webinar here – and thank you for participating in this exciting event.